I've been talking about pregnancy with Drake. We've agreed that we would both have a child, but I am a high-risk pregnancy (times two) with my disease and my blood disorder. I'll narrow them both down.
1. Factor V Leiden - A disorder of the blood. Leads to increased risk for clots in the large veins of the legs (deep venous thrombosis), or clots that travel though the bloodstream and embed in the lungs (pulmonary embolism). Factor V Leiden thrombophilia is characterized by a poor anticoagulant response to activated protein C (APC)
I couldn't get it to un-italicize! Anyway. As long as I'm healthy and active I should live a normal life. However if I even cut myself shaving, I could end up in the hospital because I wouldn't be able to stop it from bleeding with the medicine that I'm on. I'm on a high dose of blood-thinner (rat poison!) to keep myself from clotting. You clot every day. When you bruise, when you have a small nick, scrape, or cut.. etc. With FVL my clots are large and deadly, so I have to take medicine to make sure that I won't clot.
I found out that I had FVL when I was rushed to the over the summer. I had a PE (pulmonary embolism) which is a blood clot in the lung. At the age of 20, I had something that was extremely deadly and extremely extremely rare for someone so young to have. I almost died! It's crazy to think that, but it's such a blessing that I didn't. Treatment is alright. I take blood-thinner and when my blood gets too thick I do two shots in my stomach a day.
2. PCOS - Polycystic ovarian syndrome. Basically, my hormones are crazy and I have cysts all over my ovaries... (which luckily for me don't pop.) meaning I don't ovulate, have periods, I lose/gain weight drastically without even doing anything different. and I can't get pregnant without fertility medicine. The best treatment for this disease is birth control or hormone therapy.
Wait. Birth control? Hormone therapy?
Birth control is what caused my PE. Birth control and hormone therapy are a BIG no-no for my disorder.. because they 9/10 times cause major massive PE's or nasty clots in general...
Wait.... that's how I regulate my disease. So, now I'm just letting my disease go painfully wild and loose to do whatever it wants while I can't do anything about it.
So that's where I am right now. I don't know how to regulate my one disease... and I can't do anything about it because I don't have health insurance. Not until the marriage is finalized.
Basically having a child is out of the question......... but I'm still going to try, even if it kills me.
I'm sorry things seem so difficult. I am sure it's frustrating but I wish you nothing but the best and I hope you can have a family<3xo
ReplyDeleteHey, new reader here.
ReplyDeleteI'm so sorry about your health problems, my Husband and I are in that family planning phase too, and thankfully as far as I'm aware (at the age of 25) there's no extenuating circumstances that should prevent me from naturally conceiving.
But I've always wanted to adopt, and have every intent to do so, regardless of how many biological children we might have some day.
Is that an option at all for you and your Husband?
Hi! I'm a new reader and I came across this entry. My mom has PCOS and she had 3 babies :). She had hormone and ovary issues since she was 11. She would have her period for months and then she would never get it. When she was 19 she met my dad and after 2 years of "trying" they had me! (TOTAL ACCIDENT ;) haha). And then my sisters followed shortly after that. She has had really regular spans of time with her hormones, and also really horrible and abnormal ones. It was in one of those windows of time where her hormones regulated that she was able to have kids. Don't give up hope, women with PCOS definitely have kids.
ReplyDeleteJust up your chances by doing it a lot! ;) haha.